Collaborative genetics, part 5: Next steps for genetic commons
Previous installment: Private practice, how to respect the patient Sage is growing, and everything they’re doing to promote the commons now will likely continue. They’ll sign up more pharma companies...
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Recombinant Research: Sage Congress promotes data sharing in genetics
Given the exponential drop in the cost of personal genome sequencing (you can get a basic DNA test from 23andMe for a couple hundred dollars, and a full sequence will probably soon come down to one...
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Recombinant Research: Sage Congress plans for patient engagement
Clinical trials are the pathway for approving drug use, but they aren’t good enough. That has become clear as a number of drugs (Vioxx being the most famous) have been blessed by the FDA, but...
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Recombinant Research: Breaking open rewards and incentives
In the previous articles in this series I’ve looked at problems in current medical research, and at the legal and technical solutions proposed by Sage Bionetworks. Pilot projects have shown encouraging...
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Open science will be a key part of the health data equation
To unlock the potential of health data for the public good, balancing health privacy with innovation will rely on improving informed consent. If the power of big data is to be applied to scientific...
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Data sharing drives diagnoses and cures, if we can get there (part 1)
The glowing reports we read of biotech advances almost cause one’s brain to ache. They leave us thinking that medical researchers must command the latest in all technological tools. But the engines of...
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Data sharing drives diagnoses and cures, if we can get there (part 2)
Editor’s note: Earlier this week, Part 1 of this article described Sage Bionetworks, a recent Congress they held, and their way of promoting data sharing through a challenge. Data sharing is not an...
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Collaborative genetics, part 3: Dividing the pie, from research to patents
Previous installment: Five Easy Pieces, Sage’s Federation What motivates scientists, companies, and funders to develop bold new treatments? Of course, everybody enters the field out of a passion to...
View ArticleCollaborative genetics, part 4: Private practice, how to respect the patient
Previous installment: Dividing the pie, from research to patents The fear of revealing patient data pervades the medical field, from the Hippocratic Oath to the signs posted all over hospitals...
View ArticleCitizens as partners in the use of clinical data
This article was written together with Mike Kellen, Director of Technology at Sage Bionetworks, and Christine Suver, Senior Scientist at Sage Bionetworks. The current push towards patient engagement,...
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